The Mental Health of Children and Adolescents

Young Minds Matter: The second Australian Child and Adolescent Survey of Mental Health and Wellbeing
is part of the National Survey of Mental Health and Wellbeing initiative. This is an Australian
Government Department of Health funded initiative comprising national surveys of adults in the
general population in 1997 and 2007, those with psychotic illnesses in 1997-98 and 2010, and the first
national child and adolescent survey.
The 1998 Australian Child and Adolescent Survey of Mental Health and Wellbeing was the first national
survey anywhere in the world to focus on the mental health of children and adolescents. The survey
found that mental health problems were relatively common, with approximately 14% of children and
adolescents having mental health problems based on scores obtained from the Child Behaviour
Checklist (CBCL). It also found that only one in four children and adolescents with mental health
problems had attended professional services in the six months prior to the survey.
Since 1998 there have been substantial changes in the way mental health care is provided in Australia.
There have been significant changes in people’s understanding of mental health. A range of new
programmes and services has been developed in the education and health sectors that provide
information, support, and specialist help for young people and their families. Programmes such as
KidsMatter and Mind Matters promote mental health through the school environment. While each
jurisdiction has taken its own approach, schools are generally providing higher levels of support,
including access to specialist counselling. Through the Australian Government’s Better Access
programme introduced in November 2006, more general practitioners have been trained in
supporting the mental health needs of children and adolescents and their families, and children and
families now have access to Medicare-subsidised psychological therapy. Also launched in 2006,
headspace has rapidly expanded and provides a range of support services for young people aged 12-
25 years with emotional and behavioural problems and substance use problems. Additionally, several
counselling services are now available by telephone, and a range of internet-based services has also
been created that provide information and counselling support online.
A second national adult survey of mental health and wellbeing was conducted in 2007. The survey
found approximately one in five adults had experienced a mental health problem in the preceding
year, and for a substantial proportion of these adults, their problems first started in childhood or
adolescence. While access to mental health services has improved considerably, it is recognised that
for many people there can still be substantial delays in seeking help, at the time when early
interventions may have the greatest impact.
The second Australian Child and Adolescent Survey not only provides data that complements other
national surveys, but also presents a contemporary picture of mental disorders and services used by
those young people who have mental health problems.
1.1 Young Minds Matter
The Second Australian Child and Adolescent Survey of Mental Health and Wellbeing (Young Minds
Matter) was designed to provide current information about the mental health and wellbeing of
18 The Mental Health of Children and Adolescents
children and adolescents in Australia and the extent to which they use health and education services
to obtain help with problems.
The main aims of the survey were to determine:

  1. How many children and adolescents have which mental health problems and disorders.
  2. The nature of these mental health problems and disorders.
  3. The impact of these problems and disorders.
  4. How many children and adolescents have used services for mental health problems and
    disorders.
  5. The role of the education sector in providing services for children and adolescents with
    mental health problems and disorders.
    In order to fulfil these aims a broad range of information was collected from parents and carers, and
    adolescents themselves. This included diagnostic modules, questions specifically tailored for the
    Australian health care environment and schools, and sections dealing with current practices,
    including the use of the internet. Background information about the environment in which young
    people live and develop, including the functioning of families and mental health of their parents and
    carers, and their experiences at school and online, was also collected.
    Mental disorders were assessed using specific diagnostic modules from the Diagnostic Interview
    Schedule for Children Version IV (DISC-IV) and a specifically developed Impact on Functioning
    module. The DISC-IV is a standardised diagnostic instrument developed under the auspices of the
    United States National Institute of Mental Health, which is used worldwide to assess mental disorders
    in large samples. Disorder status is determined according to the criteria of the Diagnostic and
    Statistical Manual of Mental Disorders Version IV (DSM-IV), which is the diagnostic classification system
    used clinically world-wide. DISC-IV modules for seven disorders were included in the survey:
     Anxiety disorders: Social phobia, separation anxiety disorder, generalised anxiety disorder
    and obsessive-compulsive disorder;
     Major depressive disorder;
     Attention-Deficit/Hyperactivity Disorder (ADHD); and
     Conduct disorder.
    1.2 Who conducted the survey?
    The Australian Government Department of Health funded Young Minds Matter and commissioned The
    University of Western Australia to undertake the survey through the Telethon Kids Institute in
    partnership with Roy Morgan Research. Data were collected between June 2013 and April 2014 by
    trained interviewers.
    The Mental Health of Children and Adolescents 19
    The survey was developed with guidance from a Survey Reference Group, comprising over 20 experts
    in mental health for children and adolescents (spanning the health, education and community
    sectors), as well as consumer and community representatives.
    1.3 Who was surveyed?
    The survey aimed to collect information from 5,500 randomly sampled families who had children and
    adolescents aged 4-17 years from across the country, with the exception of very remote areas. An
    additional random sample of 800 families with adolescents aged 16-17 years was also undertaken to
    enable specific estimates to be produced for this age group. In total 76,606 households were
    approached and those eligible households with children in the age range were visited up to a
    maximum of six times to make contact with the household.
    Area based sampling was used to select both samples and where there was more than one child in a
    household, a child was selected at random by a computer.
    In total 6,310 parents and carers or 55% of eligible households responded and 2,967 or 89% young
    people aged 11-17 years in those households for whom their parents or carers had given permission
    also completed a questionnaire.
    Analyses showed the sample to be representative of Australian children and adolescents aged 4-17
    years on the basis of the age and sex of the child, family structure, parental education, income and
    employment, housing tenure and country of birth of both children and adolescents and their parents
    and carers.
    1.4 What were they asked?
    The survey was based on a face-to-face interview with the parent or primary carer for each selected
    child. When the selected child was aged 11 years or older, they were also invited to complete a
    confidential questionnaire on a tablet computer.
    The parent and carer interview comprised the following modules:
     Demographics;
     Diagnostic Interview Schedule for Children (DISC-IV) modules;
     Level of functional impairment;
     Strengths and Difficulties Questionnaire (SDQ);
     Use of services and perceived need for services;
     Education; and
     Family characteristics, including measures of parental mental health and family
    functioning.
    The youth questionnaire comprised the following modules:
     DISC-IV major depressive disorder module;
     Presence of symptoms of psychosis;
     Strengths and Difficulties Questionnaire (SDQ);
    20 The Mental Health of Children and Adolescents
     An enhanced version of the Kessler 10 Psychological Distress Scale (K10+);
     Use of services and perceived need for services;
     Use of internet and electronic games;
     Youth health-risk behaviours, including self-harm, suicidal behaviours, substance use,
    problem eating behaviours and sexual behaviour;
     Experience of bullying;
     Level of education; and
     Level of self-esteem.
    1.5 Strengths and limitations of the survey
    The survey provides estimates of the prevalence of mental disorders in children and adolescents in
    Australia using a methodology that assesses these against the DSM-IV diagnostic criteria used in most
    clinical settings. For the purposes of the survey seven DISC-IV modules were used, assessing seven
    mental disorders. The most recent version of the DISC-IV, however, is able to address more than 30
    psychiatric diagnoses. This has had a three-fold effect. Firstly, prevalence data are not available for
    less common mental disorders. Secondly, there is an underestimation of the comorbidity of disorders,
    as some young people who participated in the survey may have had other mental disorders not
    covered. Finally, the overall prevalence of mental disorders among children and adolescents is an
    underestimate. From evidence of other surveys both in Australia and internationally, these seven
    disorders are the most common disorders. So, while the exact level of this underestimation is unable
    to be determined, it is considered to be small in relation to the overall prevalence.
    International, standardised instruments for the assessment of mental disorders and mental health
    problems have been used whenever possible. These include the DISC-IV, the Strengths and Difficulties
    Questionnaire (SDQ) and the Kessler 10. This will facilitate international comparability of the results,
    and will allow for the data to be analysed together with that of other Australian surveys and data
    collections.
    Additional questions have been added to the survey to improve its applicability to the Australian
    context, particularly in relation to use of services. These questions have been written specifically for
    this survey to be relevant to the Australian health and education context.
    While it is possible to provide data on primary and secondary school-aged children, the sample was
    not large enough to provide prevalence data or support further disaggregation of data for single year
    age groups.
    In spite of systematic efforts to improve approaches to households, reduce refusals and provide
    incentives for participation, the 55% response rate was lower than expected, and lower than the 70%
    achieved in the 1998 survey. However, there is little evidence of any systematic biases and the results
    are considered to be statistically representative of Australian children and adolescents aged 4-17
    years.
    1.6 Presentation of data and scope of the report
    This report provides the main summary results from Young Minds Matter.
    The Mental Health of Children and Adolescents 21
    Standard statistical and reporting protocols have been observed throughout the report, and the data
    processed, analysed and presented as follows:
     Data from both the main sample and oversample of 16 and 17 year-olds have been
    combined into a single data set and weighted appropriately to represent the population of
    children and adolescents aged 4-17 years in Australia.
     The data have been collated from the responses by parents and carers, and adolescents
    aged 11-17 years. When they are from adolescent self-reports this has been noted.
     Where table cells were based on less than five individuals, the data have been suppressed.
     The 95% confidence intervals for all data have been examined and only those differences
    that are statistically significant (i.e. not likely to be due to chance) with this level of
    confidence have been highlighted in the text.
    The report includes estimates of the number of children and adolescents who have mental disorders
    and social and emotional problems. The primary findings on the prevalence of mental disorders
    presented in Chapter 2 and data on the four specific types of disorders covered in Chapters 3 to 6 are
    based on the reports of the parent or primary carer for each child. Prevalence of major depressive
    disorder based on the reports of young people themselves is included in Chapter 10.
    A particular focus of the survey was on the use of services in the health and education sectors. Service
    use, by health service providers, in schools, telephone and online services are covered in Chapter 7
    and Chapter 13 presents what young people reported about what they used, also including informal
    supports. Further information on the role of schools is provided in Chapter 9.
    The survey included an assessment by each primary carer of whether they felt their child needed help
    or support for any emotional or behavioural problems, what support or services they received, and
    whether they felt the support met their children’s needs. Where parents or carers identified needs that
    were not being met, the survey sought to identify the reasons or barriers for not seeking or receiving
    further services. This information on perceived need is covered in Chapter 8.
    Self-harm and suicidality, and the use of alcohol and other drugs, and problem eating behaviours, as
    reported by young people themselves, are covered in Chapters 11 and 12.
    The Appendix provides more detailed information on the methodology and technical issues, as well
    as further information on access to online tables and the Confidentialised Unit Record File, which is
    available subject to the necessary approvals through the Australian Data Archive.
    A Glossary of terms used in the survey and this report is also appended.

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